This research was conducted by Jane Hubert. It was published in the British Journal of Learning Disability in 2010.

Little research has focussed on the perspectives of families caring for someone with severe or profound intellectual disabilities and challenging behaviour. The main aim of this research was to gain understanding of the experiences and perspectives of families, especially mothers, of young people with these complex needs, including attitudes to long-term residential care.

To view the research, please click on the attachment below:-

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Attachment	Size
My Heart Is Always Where He Is.pdf	100.07 KB